I’m not one to get weepy very often, but between the death of my aunt and two men from my circle of friends with spinal cord injuries, 11 weeks of isolation, the current racial tensions ravaging our nation, as well as an increased workload, I feel frail and broken.Continue reading “A Timely and Short Discourse on Grief”
Over the past few years I have heard a new-to-me word used by people in the disability community: ableism.
Another –ism? I understand racism. And sexism. But ableism?Continue reading “The Surprise I Felt When I Experienced Ableism Firsthand”
I’m always looking for new and accessible ways to explore Louisville, Kentucky. And that’s how I stumbled upon the Mary M. Miller.Continue reading “An Accessible, Informative and Carefree Cruise on the Ohio River”
This article is written mostly for people with spinal cord injuries and/or neurogenic bowel who are researching the BCIR or Koch Pouch as a way to manage their bowel program.
On March 30, 2018, I took control of my problem. The previous 8 or 9 years had been hell. And I decided to have major surgery to do something about it.Continue reading “The Pros and Cons of a Continent Ostomy with SCI”
I’ve learned that if a child asks me a question, an adult is probably wondering the same thing. So in this video I show how I position myself to sleep at night. Everyone with a spinal cord injury is different. But side sleeping works best for me.
If you have ever traveled, you’ve experienced it. Digging through a suitcase looking for that pair of pants you need right now. Inevitably, they’re on the very bottom and the contents of the suitcase become upended.
However, I’ve found a solution. I think I’m a bit late to the game, but I finally discovered packing cubes.Continue reading “My Secret for an Easily Packed and Organized Suitcase”
A small, three by five inch journal sits in a drawer with other sentimental objects from my past. Blue fabric printed with small white sheep decorate its outside. On the inside cover is written:
Given by Barbara for B-day ’89
16 yrs. old
It is an unfinished journal. Life was interrupted by a spinal cord injury six months later. And although there are only five entries, it speaks volumes.Continue reading “Heartbreak after SCI: The Hard Truth with a Dose of Hope”
For someone who can’t walk, I’ve certainly put a lot of thought into choosing the right pair of shoes. Finding shoes that work as a wheelchair user can be just as difficult as Prince Charming trying to slip Cinderella’s glass slipper on her step-sisters’ big feet.Continue reading “Shoes that Work for Me as a Wheelchair User”
Abby Marsh is a C-5 quadriplegic and has a great blog over at In The Waiting. She is a talented artist (seriously, check out her work and order a custom portrait) and all-around awesome person. When she asked if I’d like to do a video with her, I jump (figuratively) at the opportunity. I hope this video is as informative as it was fun to make.
Several years ago I got to go to Colorado. When I told my friend Kerry I was coming to Boulder to speak, she said, “We’ve got to go skiing, Jen!”
Somehow I knew that was coming. Kerry had tried to get me to go downhill skiing for years.
With a deep exhale I said, “I’ll give anything a try once.”Continue reading “Conquering a Mountain in a Sit-Ski (Video)”