Articles

Why Traveling to a Developing Country with a Wheelchair is Not Impossible

Do you want to travel to a developing country, but think it’s impossible? Don’t dismiss the thought. It might take a little extra planning, some additional help (how much depends on your disability) and possibly a little extra cash. But it’s well worth the effort. Continue reading “Why Traveling to a Developing Country with a Wheelchair is Not Impossible”

BCIR

BCIR Update #5

I started to write this update 10 days ago. It began: “I’m dressed. I transferred into my chair. I’ve been spending about 45 minutes twice a day outside here in Florida’s fresh, breezy warm air. But Thursday or Friday will be the true test: I will begin intubating (using the stoma to empty the new pouch).”

Today (Thursday, May 17) I’m still sitting in a Florida hospital room, drinking Miralax to clean my system out for a second surgery to repair a fistula (same one as last time). Continue reading “BCIR Update #5”

Articles

Abundant Living

After my injury it took me quite some time to learn, or re-learn, the concept of trying. My go-to response was, “I can’t.”

Eleven years after my injury, I finally attempted a sport again. I tried playing wheelchair tennis. I was awful. Seventeen years later, I’m still bad at tennis. But I try. And I play.

I’ve learned to live. What’s the use in being alive if you aren’t living boldly? Click below to read about 4 principles I try to put into practice to live an abundant life.

Abundant Living

BCIR

BCIR Update #3

Well, I knew when I decided to have this procedure there were risks of complications. Unfortunately, I’m one of the people to develop a fistula. A fistula is a small hole. Mine is located near the top of the pouch and leads to the surface of the skin. When a I began intubating on Wednesday, it didn’t go well. By evening, I was back on suction with a scope scheduled for Thursday. After the scope confirmed the fistula, I had a CT Scan with contrast. Continue reading “BCIR Update #3”

BCIR

BCIR Update #1

Due to overwhelming support, but inadequate energy, here’s a brief overview of my BCIR journey so far. BCIR is an internal continent catheterizable colostomy with no external appliances like a colostomy or iliostomy. Go to www.bcir.com for more info on the procedure and here for my journey on the decision.

I enjoyed “My Last Supper” and took in a beautiful Florida sunset.

Last Supper Continue reading “BCIR Update #1”

Articles

Don’t Be Like Rosie: Recharge Your Battery

I want to introduce you to a coworker. Rosie works in my office and she has a big job to do. It’s stated in her job description that she is supposed to periodically re-energize herself so she can finish her assignment. Regrettably, we find Rosie in odd places in the building, simply having lost her ability to do her job because she ran out of energy. Continue reading “Don’t Be Like Rosie: Recharge Your Battery”

Articles

On Being Single

It’s almost Valentine’s Day. With that in mind, I’m re-posting this Bard Care article.

I’m single. I rarely sulk in my singleness. I am free to do what I want and when. The remote is always in its place, except when my dad comes over. As an introvert, I truly cherish my alone time. I’m in charge of my finances. (Read: I like control.)

Read the rest of the article by clicking on the picture below.

On Being Single

Quadly Cooking

Quadly Cooking: Coconut Curry Lime Chicken with Rice Noodles

Let’s start off by defining Quadly Cooking. I’m a quadriplegic due to a C6-7 spinal cord injury. “Gimpy” or “quadly” aptly defines the function – or lack thereof – that I have in my hands.  Thanks to several surgeries called tendon transfers, I have a decent grip with my left hand that improved my ability to cook.

For a variety of reasons I try to make meals from almost-scratch if possible. Not only is it healthier, but I avoid food intolerances by cooking meals myself. I use a lot of short cuts that make cooking do-able and I’ll share these in the videos and posts. Continue reading “Quadly Cooking: Coconut Curry Lime Chicken with Rice Noodles”

Articles

Welcome

Welcome to my site! To be honest, this is a bit overwhelming and intimidating. But let’s take this journey together and see where the path leads.

On Wednesday, January 17, 2018, an article I wrote was published by The Mighty. To say it has resonated with many people is an understatement. Unfortunately, just as surprising is the number of people who are unaware of the financial issues that some of us with disabilities face.

Read the article at the link below. As a disclaimer I do not agree with the title. I do not think society is the problem; government policy is where the problem exists. I shared my story with the hope that my voice will be heard in Frankfort. I urge lawmakers to reverse the income limits for personal care programs so that others with disabilities will not find themselves in my position.

Click below to read this article.

The Mighty Link