Articles

Save Your Most Valuable Asset with Pressure Mapping

For those of us with spinal cord injuries, our butt is our most valuable asset. With limited or no sensation, pressure sores or red spots can quickly and easily develop. Ideally, we use a specialized cushion to disperse weight evenly to prevent skin breakdown.

One of the most common questions I see on forums for spinal cord injuries is, “What’s the best cushion?” The problem is that people aren’t asking the right question. Why? Because the best cushion for me may not be the best cushion for you.

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Quadly Cooking, Video

Quadly Cooking with Abby

What’s the best part of having a spinal cord injury? It’s an easy answer: The friends I’ve made. I met Abby when she was 17 years old and in rehab. It’s been a joy to watch her finish high school, graduate from college, and go to work. She hopes to move out and live independently in the near future. Cooking is a piece of that puzzle.

Abby recently drove down to try to cook in my accessible kitchen. She rocked it! Watch this short video to see her in action. I’m incredibly impressed at her use of tenodesis (a grasp using wrist flexion) with a C5-6 SCI. She also used her spasticity to her advantage a few times.

Links to the adaptive devices and the recipe are in the video description.

Articles

The Pros and Cons of a Continent Ostomy with SCI

This article is written mostly for people with spinal cord injuries and/or neurogenic bowel who are researching the BCIR or Koch Pouch as a way to manage their bowel program.

On March 30, 2018, I took control of my problem. The previous 8 or 9 years had been hell. And I decided to have major surgery to do something about it.

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Articles

Heartbreak after SCI: The Hard Truth with a Dose of Hope

A small, three by five inch journal sits in a drawer with other sentimental objects from my past. Blue fabric printed with small white sheep decorate its outside. On the inside cover is written:

Jenny Smith
Given by Barbara for B-day ’89
16 yrs. old

It is an unfinished journal. Life was interrupted by a spinal cord injury six months later. And although there are only five entries, it speaks volumes.

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Articles

What ‘The Greatest Showman’ Can Teach Us About Accepting Ourselves

Have you seen the movie The Greatest Showman? It’s the fictional story of Phineas T. Barnum. However, the stars of the show – and the ones with whom I resonate – are Lettie (the bearded woman), Anne (trapeze artist), Charles (the little person General Tom Thumb) and the other performers who are hired as “unique persons” for Barnum’s museum and show.

It’s these characters’ sense of feeling like an outcast – and eventually embracing their differences – that has had me watching/listening to the movie over and over again.

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Articles

From Foley to Freedom – My Experience with the Mitrofanoff Procedure

There are many ways to manage bladder care with a spinal cord injury or disability. Foley catheters, suprapubic catheters, and intermittent catheterization are options. There are pros and cons to each method. This is my story of how I decided to undergo a major surgery to be able to independently catheterize through a stoma.

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Articles, Video

How I Do a Sliding Board Transfer as a C6-7 Quad

“How do you get in and out of bed?” It’s a common question children ask. And if kids are asking, I know adults are wondering! Below is a video demonstration of a sliding board transfer. It’s entirely balance, physics and strength. I have no function below my level of injury, so this transfer is done completely with my arms and shoulders.