Articles

The Pros and Cons of a Continent Ostomy with SCI

This article is written mostly for people with spinal cord injuries and/or neurogenic bowel who are researching the BCIR or Koch Pouch as a way to manage their bowel program.

On March 30, 2018, I took control of my problem. The previous 8 or 9 years had been hell. And I decided to have major surgery to do something about it.

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Articles

Heartbreak after SCI: The Hard Truth with a Dose of Hope

A small, three by five inch journal sits in a drawer with other sentimental objects from my past. Blue fabric printed with small white sheep decorate its outside. On the inside cover is written:

Jenny Smith
Given by Barbara for B-day ’89
16 yrs. old

It is an unfinished journal. Life was interrupted by a spinal cord injury six months later. And although there are only five entries, it speaks volumes.

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Articles

What ‘The Greatest Showman’ Can Teach Us About Accepting Ourselves

Have you seen the movie The Greatest Showman? It’s the fictional story of Phineas T. Barnum. However, the stars of the show – and the ones with whom I resonate – are Lettie (the bearded woman), Anne (trapeze artist), Charles (the little person General Tom Thumb) and the other performers who are hired as “unique persons” for Barnum’s museum and show.

It’s these characters’ sense of feeling like an outcast – and eventually embracing their differences – that has had me watching/listening to the movie over and over again.

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Articles

From Foley to Freedom – My Experience with the Mitrofanoff Procedure

There are many ways to manage bladder care with a spinal cord injury or disability. Foley catheters, suprapubic catheters, and intermittent catheterization are options. There are pros and cons to each method. This is my story of how I decided to undergo a major surgery to be able to independently catheterize through a stoma.

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Articles, Video

How I Do a Sliding Board Transfer as a C6-7 Quad

“How do you get in and out of bed?” It’s a common question children ask. And if kids are asking, I know adults are wondering! Below is a video demonstration of a sliding board transfer. It’s entirely balance, physics and strength. I have no function below my level of injury, so this transfer is done completely with my arms and shoulders.